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Dominic is a teacher and author of several books. He has been involved in Relationships and Sexuality Education since 1976, and delivers lectures throughout the country on RSE and parenting issues. Reproduced here with the permission of the author
The Danish philosopher Kierkegaard once said "Life is not a problem to be
solved but a reality to be experienced", and the American psychologist M. Scott
Peck observed that "life is difficult!" So it is that struggling with
difficulty is a part of life - but it is not life itself.
For those with PD, and their carers, it may seem that they have more
than their fair share of problems. When the disease, and dealing with it, become
uppermost in their daily lives, they can become swamped and sometimes overwhelmed.
Inevitably this can have the undesired side-effect of getting in the way of
relationships. In the case of couples, their lovemaking can be
diminished, and may be temporarily (or even permanently) extinguished.
What I propose to do in this article, is to take a sane and sensible look
at some of the issues that may get in the way of intimacy for loving couples,
who are sharing their lives with an uninvited and unwelcome extra partner -
Parkinson's Disease - and to consider some possible remedies.
It is important to note that, even in the most successful and long term relationships (where health
problems are not a factor), sexual problems of one kind or another will inevitably occur
at some time. Therefore, where one or both partners have a health problem,
it is virtually certain that there will be problems in the marital
relationship. The key to dealing with those problems is a four letter word
ending in ...k, which means intercourse - and, you've guessed it - that
word is TALK!
Relationships do not work automatically. A huge amount of effort, time and energy is
required to maintain and sustain them. Good communication on all matters
is essential, yet one area many couples neglect is talking about sex. If your
parents were uncomfortable telling you about sexual matters, then you may
be similarly inhibited. This is not surprising, and many couples fall into
the trap of presuming that no other couples could possibly have difficulty
discussing sexual matters with each other, or indeed that they could be
experiencing difficulties in their sex lives. In reality, the vast majority of
loving couples experience times when their love lives are at a low ebb.
When things go wrong in other areas of our lives we tend to try and remedy
them, but when it comes to our sexual relationships, our embarrassment
can inhibit us from taking remedial action. All things being equal, normal
work and family pressures can have us so exhausted, that lovemaking is the last thing on our minds.
For many couples, the pattern of their lovemaking can become staid and predictable.
There's no harm in that of course, but the decision to plan significant
romantic events, with and for each other, is essential. It is not true that
the best sexual encounters are spontaneous - a little planning goes a long
way, and that includes making time for intimacy. If that means making an
appointment with one another, then why not do so? A romantic phone call, telling your
partner how much you love them, and arranging a quiet private time, can boost your
relationship no end. Don't just think about doing it - do it!
Long term illness of any kind will inevitably affect a person's libido or sex drive.
In order to maintain one's sexual function and interest, it will be
necessary to learn what works best for you and your partner. The most common sexual
difficulties couples encounter, relate to lack of desire and lack of
arousal. Depression, which is common in PD, can affect desire and arousal. Carefully
chosen anti-depressant medication can be prescribed to great effect. The
same applies if your sleeping pattern has gone haywire. Regular medical
checks, eating a balenced diet, and getting a reasonable amount of
exercise, will all contribute to a sense of well-being, which can
contribute to enriching your personal self-esteem, which will positively
affect your relationships.
In PD patients, sexual function can be impaired by persistent tremor, lack of mobility and urinary
incontinence. For men (especially those with urinary incontinence), it is important
to have their prostrate gland checked regularly. In women, stress incontinence
may be associated with the effects of childbirth. Just because you have PD, that doesn't mean that you
can't or won't develop other health problems. Parkinson's medications can have
some bearing on sexual function too. A potential side-effect of levodopa/PDS is that
of hypersexuality, which can put a strain on one's relationship as much, if not more, than
lack of desire. The motor fluctuations (or being "off") associated with PD medications
can also affect sexual function.
For women, menstrual problems, childbirth and the rearing of small children and other family
pressures, as well as the physical changes which occur before, during and after the menopause,
can all have a direct or indirect impact on levels of desire. Add the difficulties associated
with PD to these, and it is not in the least bit surprising that one's libido can be low. An understanding
and helpful GP and/or gynaecologist can prove useful allies on the medical side. For both men and
women, family planning issues are also of great significance, and decisions in this area
are the responsibility of both partners - yet another reason why we need to get talking!
In the case of male impotence (where the man cannot achieve or maintain erection), there
are a number of therapeutic approaches which can be adopted. It is essential that medical advice
be sought, because it is important to establish the exact cause. Sometimes, impotence has a
physical cause, or there may be psychological reasons for ot. It is worth noting that,
if it has taken a while for the problem to develop, then it will take a while for
the problem to be resolved, and the good news is that there is an extremely high success rate
in the treatment of male impotence.
I have been unable to find out if there are any unacceptable interactions between PD
medications and Viagra, although
there are a number of natural remedies which clain to provide similar success to Viagra, without
any unacceptable side-effects or interactions. For further information about these, I recommend that
anyone with Internet access should use a search engine called http://www.dogpile.com and key
in the words "sexual dysfunction" in inverted commas. This will provide a list of Internet
sites which you may find both interesting and useful - even if only to realise how common
such problems really are!
Everyone changes with time, and our needs, capacity and desires change too.
This is natural and inevitable. The line from the Glen Campbell song "...there's been a
load of compromising on the road to my horizon..." rings true, and talking things through honestly
and constructively is enormously helpful.The following questions from the RELATE Guide to
loving relationships may prove a useful starting-point:
Then honestly, without interrupting, take the time to tell each other how you are feeling.
Suspend your desire to apportion blame. Choose not to feel hurt, and try to listen with empathy -
putting yourself in the other's shoes. Make notes if you find it useful, and try to tease out
all the issues. It is really surprising how we can underestimate the depth of our
partner's feelings on intimate issues. We all have hidden fears and anxieties which can help
us to build up walls of resentment, which in turn prevent us reaching out to each other and
really communicating with love!
Another tip is to try and make some time for reminiscence. Think back to the early part of your
relationship. Remind yourself of the exciting sexy times you had together. Then tell each
other what you remember. If you do this while sharing a quiet, candle-lit meal or snuggled up
on the couch, you can rekindle fond memories of earlier times. Then bring your thoughts to the
present, and tell each other what you still love about each other. There is no substitute for
telling your partner how much you love them. Then remind yourself of just how much fun kissing
can be - tonsil tennis is not just for teenagers! Take your time and enjoy yourselves, and
don't forget that laughter is wonderfully therapeutic. Remember too that good lovemaking does
not have to lead to sexual intercourse. Kissing, touching and hugging, and even sensual massage,
can bring a wonderful sense of wellbeing and closeness that cannot be underestimated! The glossy
magazines constantly sell the line that sex is only for the young and the beautiful, yet our need
for intimacy does not diminish with age. There isn't any reason why we cannot continue to be intimate
with our partners well into old age. Some couples, however, choose to allow this side of their relationship
to fade - rather like the elderly couple who were in bed one night when the husband asked his
wife: "Will I nibble your ear like I used to?", to which she replied:"No, because by the time you get
your teeth in I'll be asleep!"
However, if your relationship is truely in crisis, then you may well need the assistance
of an experienced counsellor. ACCORD is the new name for the Catholic Marriage Advisory Council. Please
note that you do not have to be of any particular religious persuasion to use their
services. They have a number of locations nationwide, and provide an excellent confidential
counselling service for individuals and couples. Contact telephone numbers are available
in your telephone directory. However, for those who are not ready for, or don't need counselling,
there are many excellent publications which can help you both to initiate the the
healing process. Take the time to browse the health section of your local bookstore.
On a final note, the crucial element in restoring balance in your relationship is being
pro-active. Examine the issues, take stock, and actually do something! You won't regret it!
The marriage guidance group, RELATE, have several excellent publications. The following is a list of
several useful titles:
Others worth finding are:
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